Patient-Researchers and Physician-Consultants Confront Chronic Disease

In a personal account about what it’s like to live with Type 1 Diabetes, STSI’s Chief Advocate for Participatory Research, Anna McCollister-Slipp, describes the demands of managing her health and disease, and the changing nature of the doctor–patient relationship.

“Because of the demands of managing insulin, the role of my physicians has changed dramatically. Once, they were the source of all knowledge and guidance. Now, I consider my physicians to be consultants.”

Anna discusses how using digital tools and data-generating devices provide her with critical data about everything from glucose levels and blood pressure, to hydration levels, weight, body fat, activity, sleep, and energy, making her the “executive in charge of maintaining her health and managing her disease”.

Read full article in NEJM Catalyst.